Palliative Care for Infants, Children, and Adolescents: A Practical Handbook - Softcover

Softcover

ISBN 10: 080188005X ISBN 13: 9780801880056

Verlag: The Johns Hopkins University Press, 2004

Über diesen Titel

Críticas:

A case-based clinical handbook, [ Palliative Care for Infants, Children, and Adolescents] combines a pragmatic approach to symptom management with a humanitarian approach emphasizing more abstract issues such as psychological support for both patient and caregiver.

(SciTech Book News 2005-01-00)

This practical guide provides professionals involved in pediatric end-of-life care with comprehensive information for hands-on care in a single volume.

(Home Health Care Nurse)

An excellent guide to the concepts and practice of palliative care for pediatric patients. A valuable addition to the field of pediatrics.

(Doody's Book Review Service)

Presents helpful, and thoughtfully written information on how to best help and treat terminally ill children, teens, and their families... An excellent resource for any medical provider... Informative, comprehensive and readable.

(Jeanelle Bitikofer E-Streams 2005-01-00)

Provides an inspiring and accessible look at what end-of-life care for children should be.

(Kira O'Neil Bona Journal of the American Academy of Child and Adolescent Psychiatry 2006-01-00)

A comprehensive look at pediatric palliative care. It should be a reference textbook that serves as a 'bible' in this area. The book is organized in a way that allows readers from different disciplines to quickly find and peruse chapters relevant to their practice. A great addition to the field.

(Gregory J. Kato, M.D., The Johns Hopkins School of Medicine)

I highly welcome this practical handbook and recommend that it be on the shelves of pediatricians and other healthcare providers who might have to take care of a dying child and his or her family.

(Tamara Vesel, M.D. Journal of Palliative Medicine 2005-01-00)

Anyone involved with pediatric palliative care will benefit from reading this book. Highly recommended.

(Roger Woodruff IAHPC Bookshop 2005-01-00)

A great resource and learning tool... well-written, well organized, very practical, and user friendly as a reference for all disciplines involved with palliative care.

(Sonia Imaizumi, M.D. American Acadaemy of Pediatrics Newsletter 2007-01-00)

Reseña del editor:

Palliative care for terminally ill adults is receiving growing recognition as a major component in medical care. Yet far less is known or understood about the needs of infants and children with life-limiting conditions. Developed by leading researchers and practitioners from relevant disciplines, this practical guide provides professionals involved in pediatric end-of-life care with comprehensive information for hands-on care in a single volume.

Early chapters present the epidemiology of palliative pediatrics, ethical principles, education, and advocacy. Contributors next address the decision-making process, holistic symptom management, communication with the child and family, as well as their psychological and spiritual needs, and such issues as bereavement and caregiver suffering. Individual chapters focus on palliative care in specific settings (NICU, PICU, home, school, and community) and for major conditions (genetic disease, HIV, and cancer). Case studies discuss the experience and perspective of parents. Intended for primary care doctors, pediatric practitioners and specialists, home care nurses, hospice workers, and pastoral counselors, the book also includes a list of additional resources and support organizations for professionals and family members.

ContributorsStephen R. Connor, Ph.D., Vice President, National Hospice and Palliative Care Organization, Alexandria, VirginiaLynn Czarniecki, M.S.N., C.N.S., Advance Practice Nurse, Department of Pediatrics, New Jersey Medical School, Newark, New JerseyBetty Davies, R.N., Ph.D., Professor and Chair, Department of Family Health Care Nursing, University of California at San Francisco, San Francisco, CaliforniaDeborah Dokken, M.P.A., Parent and Family Advocate, Chevy Chase, MarylandDale Evans, R.N., Ph.D., Vice President, Hospice and Community Services, Community Nursing Services, Salt Lake City, UtahChris Feudtner, M.D., Ph.D., M.P.H., Director of Research and Attending Physician for PACT (Palliative Care Team), Division of General Pediatrics, Children's Hospital of Philadelphia, Philadelphia, PennsylvaniaW. Jeffrey Flowers, M.Div., Director of Pastoral Counseling, Medical College of Georgia Hospital and Clinics, Augusta, GeorgiaJoel Frader, M.D., Professor of Pediatrics, Medical Ethics, and Humanities, Northwestern University, Children's Memorial Hospital, Chicago, IllinoisGerri Frager, R.N., M.D., F.R.C.P.C., Medical Director, Pediatric Palliative Care Service, IWK Health Centre, Halifax, Nova Scotia, CanadaDavid R. Freyer, D.O., Associate Professor of Pediatrics and Human Development, Michigan State University College of Human Medicine; Division of Pediatric Hematology-Oncology and Bone Marrow Transplantation, DeVos Children's Hospital, Grand Rapids, MichiganSarah Friebert, M.D., Director, Division of Pediatric Palliative Care, Children's Hospital of Akron, Akron, OhioJ. Russell Geyer, M.D., Professor of Pediatrics, Division of Hematology-Oncology, Children's Hospital and Regional Medical Center, Seattle, WashingtonMary Jo Gilmer, R.N., M.B.A., Ph.D., Associate Professor of Nursing, Vanderbilt University School of Nursing, Nashville, TennesseeSam Grubman, M.D., Pediatrician, Department of Pediatrics, Saint Vincent's Hospital, New York, New YorkMaria Gudmundsdottir, R.N., Ph.D., Postgraduate Research Faculty, Department of Family Health Care Nursing, University of California at San Francisco School of Nursing, San Francisco, CaliforniaRichard Hain, M.B.B.S., M.D., M.Sc., M.R.C.P., F.R.C.P.C.H., Senior Lecturer in Paediatric Palliative Care, University of Wales College of Medicine, Llandough Hospital, Cardiff, WalesGeraldine Haynes, R.N., B.S.N., Nursing and Palliative Care Consultant, Kirkland, WashingtonRoss M. Hays, M.D., Professor, Departments of Rehabilitation Medicine and Pediatrics, University of Washington School of Medicine, and Director, Palliative Care Consulting Service, Children's Hospital and Medical Center, Seattle, WashingtonJoanne M. Hilden, M.D., Chair, Department of Pediatric Hematology-Oncology, and Medical Director, Pediatric Palliative Care, The Children's Hospital at The Cleveland Clinic, Cleveland, OhioBruce P. Himelstein, M.D., F.A.A.P., Pediatric Palliative Care Program Director, Children's Hospital of Wisconsin; Associate Professor, Division of Hematology-Oncology, Department of Pediatrics, Medical College of Wisconsin, Milwaukee, WisconsinSteven R. Leuthner, M.D., M.A., Associate Professor of Pediatrics and Bioethics, Medical College of Wisconsin, Milwaukee, WisconsinTiffany Levinson, R.N., M.S., F.N.P., Stem Cell Transplant Nurse Practitioner, Children's Memorial Hospital, Chicago, IllinoisStephen Liben, M.D., F.R.C.P., Director, Palliative Care Program, Montreal Children's Hospital, Montreal, Quebec, CanadaYarrow McConnell, B.Sc., Student, Faculty of Medicine, Dalhousie University, Halifax, Nova Scotia, CanadaElaine Morgan, M.D., Associate Professor of Pediatrics, Department of Hematology-Oncology, Children's Memorial Hospital, Northwestern University, Chicago, IllinoisJason Morrow, M.D., Ph.D., University of Texas Medical Branch, Galveston, TexasJames Oleske, M.D., M.P.H., François-Xavier Bagnoud Professor of Pediatrics, and Director, Division of Pulmonary, Allergy, Immunology, and Infectious Diseases, Department of Pediatrics, New Jersey Medical School, Newark, New JerseyStacy F. Orloff, Ed.D., L.C.S.W., Manager, Child and Family Support Program, The Hospice of the Florida Suncoast, Largo, FloridaAnthony Perszyk, M.D., Geneticist and Pediatrician, Division of Genetics, Nemours Children's Clinic, Jacksonville, FloridaSara Perszyk, R.N., B.S.N., Pediatric Palliative Care and Hospice Nurse, Child and Family Support Program, The Hospice of the Florida Suncoast, Largo, FloridaKathleen Quance, M.S., C.C.L.S., Counselor, Child and Family Support Program, The Hospice of the Florida Suncoast, Largo, FloridaCynda H. Rushton, D.N.Sc., R.N., F.A.A.N., Associate Professor of Nursing, Faculty, Phoebe Berman Bioethics Institute, and Coordinator, Harriet Lane Compassionate Care, Johns Hopkins University and Children's Center, Baltimore, MarylandJohn M. Saroyan, M.D., Fellow, Pediatric Pain and Anesthesia, College of Physicians and Surgeons, Columbia University, New York, New YorkCarson Strong, Ph.D., Professor of Human Values and Ethics, University of Tennessee Health Sciences Center, Memphis, TennesseeLizabeth Sumner, R.N., B.S.N., Director of the Children's Program, San Diego Hospice Corporation, San Diego, CaliforniaSuzanne Toce, M.D., Professor of Pediatrics, St. Louis University; Attending Neonatologist, Cardinal Glennon Children's Hospital, St. Louis, MissouriErwin Veale Jr., M.Div., Associate Director of Pastoral Care and Counseling, and Chaplain, Children's Medical Center, Medical College of Georgia Health, Inc., Augusta, GeorgiaSharon Weinstein, M.D., Director of Pain Medicine and Palliative Care, Huntsman Cancer Institute, University of Utah, Salt Lake City, UtahJanice Wheeler, M.Ed., President and Founder, Project Joy and Hope for Texas, Pasadena, TexasJ. William Worden, M.Ed., Ph.D., Professor of Psychology, Rosemead Graduate School of Psychology, Laguna Niguel, California

Über diese Auflage

• Verlag: The Johns Hopkins University Press
• Erscheinungsdatum: 2004
• ISBN 10: 080188005X
• ISBN 13: 9780801880056
• Einband: Tapa blanda
• Anzahl der Seiten: 416
• Herausgeber: Carter Brian S., Levetown Marcia