"Empowered" patients create advantages for themselves and communities by monitoring their own needs and reducing loads on overstretched resources. But the patient-consumer can be seen as isolated and overly responsible for choices about their care. This volume reflects on isolation and relationships in health care, including relationships between patients and their peers or families as well as those they have with clinicians.
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Natalya Godbold is at the Centre for Health Communication at the University of Technology Sydney, Australia, where she teaches in the area of Information and Knowledge Management. Her research interests include patient involvement in their care, and human information behaviour, with a focus on contextualised, social sense making. Her PhD investigated how people make sense of kidney failure in online discussion groups, using ethnomethodological perspectives and discourse analysis. Maria Vaccarella is a Research Fellow at the Centre for the Humanities and Health, King's College London (UK), where she also teaches for the Comparative Literature programme. She is Joint Leader of the Id.net Hub 'Making Sense of', as well as Project leader of 'Making Sense of Chronicity'. Her main research interests are: the application of narrative medicine to the field of epileptology, the use of graphic pathographies in medical and patient education, and cancer narratives, with a specific focus on the socio-cultural implications of Western breast cancer discourse.
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