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Fight!: One Family's Battle with The Butterfly Disease - Softcover

Kalynka-Brown, Valerie

 
9781989840887: Fight!: One Family's Battle with The Butterfly Disease
Softcover
ISBN 10: 1989840884 ISBN 13: 9781989840887
Verlag: Big Moose Publishing, 2025

Inhaltsangabe

She never stopped fighting...

Valerie Kalynka-Brown’s sister, Marlene, was born with an extremely rare skin disease, Epidermolysis Bullosa (EB). EB is called The Butterfly Disease because if you touch a butterfly, it’s wings are either damaged or it dies. The skin of those with EB, if touched, causes their skin to blister or peel away, and if handled too aggressively, can even cause death. Their skin is as delicate as a butterfly’s.

Marlene had the most severe known form of EB. Despite this, she fought to live as normally and as fully as possible. She did things doctors told her she never would be able to such as live on her own, drive a car, and ride horses.

She didn’t do it alone. Without the love, sacrifice and dedication of her family, Marlene wouldn’t have been able to live as fully as she did.

This book is for anyone who is living with or has a loved one who is living with a debilitating disease. While there will be many tough times, there is also hope, resilience, blessings and triumphs. Marlene showed her family, friends, and the world what is possible when you refuse to accept the limitations others try to put on you.

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Verlag
Big Moose Publishing
Erscheinungsdatum
2025
Sprache
Englisch
ISBN 10 
1989840884
ISBN 13 
9781989840887
Einband
Taschenbuch
Anzahl der Seiten
81
Kontakt zum Hersteller
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