Beispielbild für diese ISBN
Gebraucht kaufen
Preis: EUR 46,89 Währung umrechnen
Versand: EUR 0,00 Innerhalb USA Versandziele, Kosten & Dauer
In den Warenkorb legen

Diagnosis: Rare Disease

Crompton, Denise

ISBN 10: 1937376176 / ISBN 13: 9781937376178
Verlag: All Star Press, 2014
Gebraucht Zustand Used Soft cover
Verkäufer Book Deals (Lewiston, NY, USA) Anzahl: 1
Bei weiteren Verkäufern erhältlich Alle  Exemplare dieses Buches anzeigen

This Book is in Good Condition. Clean Copy With Light Amount of Wear. 100% Guaranteed. Buchnummer des Verkäufers ABE_book_usedgood_1937376176

Über diesen Titel:


"Rare Disease" the diagnosis that no parent ever wants to hear. "This book gives a heartbreaking exposé of what life is like for families that have a member with a rare disease," explains Carolyn Paisley-Dew, ISMRD Board Member. "It follows the journey of 13 families who have one or more children with a rare disease called Mucolipidosis, as they wade through the erratic diagnosis process, medical muck-ups, endless pain, a plethora of medical appliances and home modifications, special education, multiple hospitalizations and surgeries, unrelenting stress and the ever-present fear of death. The book highlights how stoic, resilient, strong and resourceful these families are, and how heartless, or thoughtless, some medical professionals can be. It underlines the importance of networks to allow these isolated families to support each other and to give them a sense of belonging. Author Denise Crompton presents these stories in a style that is compassionate and easy to read. Other families with a rare disease will recognize themselves in this book. It is a must for medical professionals, especially those who want to understand the families and how to best work with them during these difficult times. What Others Are Saying About this Book: "Wow, breadth & depth: The various chapters of Diagnosis: Rare Disease cover every aspect of the impact of a rare disease on individuals. Within each chapter is deep insight into the tremendous differences of impact on each of 15 Individuals. In addition the style is compelling reading." ~ Bob Gorman - Independent Research Professional "Denise Crompton captures the essence of living with a rare disease; the quest for a diagnosis, the fears, frustrations, heartbreaks, navigating the medical establishment, and the loss of loved ones. As one who has children battling a rare disease, I am encouraged by the journeys of the individual families Denise writes about, knowing that I am not alone in my feelings and struggles, and energized by the families' determination to live their lives to the fullest." ~ Susan Anganes "As a retired operating room nurse, I have been amazed at the history of Kelley Crompton. During her lifetime she underwent numerous surgeries in hopes of improving her life style, preserving the same and hoping for a cure. I know how tough it is to enter an operating room the first time but returning again and again can be demoralizing. I can tell you firsthand how those giving such care are frustrated beyond belief. We are there to help and hope for lasting remedies. To see the same patient return numerous times is heart wrenching. My hope is that all health care givers will read this book so that the care the give will be compassionate. Sometimes just being there, truly listening and supporting a patient is all we can do. But we must start!" ~ Jeanne C. Sturrock, retired operating room nurse "Regarding the topic of Diagnosis: Rare Disease, Denise Crompton amply demonstrates two of her important assets: one is the personal experience with ML III in her own daughter and two, her manifest ability to widen the subject and to bring a streamlined report on a number of other patients and families with either ML II or ML III. The book is to become a classic in the still little known world of very rare or orphan hereditary disorders." JG Leroy MD. PhD Professor & Chairman Emeritus Depts.Pediatrics & Med. Genetics Univ. Hosp. & Univ. Ghent GHENT, Belgium Senior Research Scholar Greenwood (S.C.) Genetic Center Diagnosis: Rare Disease is published by All Star Press - Books that Change Lives
„Über diesen Titel“ kann sich auf eine andere Ausgabe dieses Titels beziehen.

Bibliografische Details

Titel: Diagnosis: Rare Disease

Verlag: All Star Press

Erscheinungsdatum: 2014

Einband: Soft cover

Zustand: Used


Zahlungsarten, die dieser Verkäufer akzeptiert

Visa Mastercard American Express Carte Bleue

Verkäufer Book Deals
Adresse: Lewiston, NY, USA

AbeBooks Verkäufer seit 7. Mai 2014
Verkäuferbewertung 4 Sterne


We guarantee the condition of every book as it's described on the AbeBooks web
sites. If you're dissatisfied with your purchase (Incorrect Book/Not as
Described/Damaged) or if the order hasn't arrived, you're eligible for a refund
within 30 days of the estimated delivery date. If you've changed your mind
about a book that you've ordered, please use the Ask bookseller a question link
to contact us and we'll respond within 2 business days.


Shipping costs are based on books weighing 2.2 LB, or 1 KG. If your book order is heavy or oversized, we may contact you to let you know extra shipping is required.