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Inhaltsangabe: A Hospital Bed at Home is a linked collection of true stories about the experience of being a carer during the weeks, months and years that can stretch between the day someone you love is diagnosed with an incurable, fatal disease and the day of his or her death. Couples facing separation after forty years together; a workaholic with three small children and a dying, angry wife; an Irish immigrant called home to nurse an ailing father who cannot, or will not, eat; a Buddhist couple striving for serene acceptance of a brain tumour? The patients and carers profiled in these stories bring to their challenging situations the gamut of typically human strengths and weaknesses, plus all the baggage of their pre-existing relationships. The narratives are intensely personal and biographical, but the insights and information they contain about illness, caregiving and dying at home have profound and general relevance. The author's reflections on these topics are woven throughout, linking the individual stories and concluding with a gritty memoir about caring for her own mother, an anxious optimist who was ravaged by cancer.

Vom Autor: About seventy percent of people say they would rather die at home than in an institution. Few achieve this even when their death is 'anticipated' due to life-threatening illness. However, most of the care terminally ill people receive in their final year of life occurs at home, and involves considerable commitment from a family member or friend. These primary carers may find themselves thrust into a demanding and stressful role with minimal information and no previous experience. Research shows that they can struggle, through love and a sense of duty, to fulfil this role, with adverse effects on their own physical, psychological, emotional, social and financial well-being.
My book chronicles the joys and challenges of caring for a loved one with a terminal illness, from diagnosis to death.  A Hospital Bed at Home, which was created as part of a PhD in writing, contains intensely personal, biographical, narrative nonfiction stories, as well as a memoir about my own experience of caring for my mother during the final stages of breast cancer.
The motivation for undertaking this PhD project was to explore questions that had lingered with me even after my own time as a caregiver ended in 2006. My mother spent her final six months in a state of utter dependence, unable to communicate effectively, stand up, feed herself or even roll over in bed without assistance. Like those who contributed to the national inquiry into the social impact of caring for terminally ill people, our family found the demands of caregiving to be the hardest thing we have ever done. Being an intelligent, well-organised kind of person, I naively assumed that I would rise to the occasion, but instead found that I was sinking under the stresses, ground down by worry, injury, lack of sleep and anticipatory grief. Recording what I was going through, often in the middle of the night, was part of how I processed this difficult time.
After Mum's death, I decided to write about what it is like to be a caregiver during the weeks, months and years that can stretch between the day someone you love is diagnosed with an incurable, fatal disease and the day of their death. It was immensely reassuring for me to find that other carers also struggled to do the job well, and to realise that we had faced many of the same difficulties. Each story helped me recognise that carers and patients bring to their roles the full gamut of typically human strengths and weaknesses, plus the complications of their pre-existing relationship. To find the situation extremely difficult at times is entirely normal; to respond imperfectly at times is entirely understandable. I felt a great load of residual guilt lift from my shoulders as I wrote.
The stories show how particular individuals have dealt with the awesome responsibility of overseeing the journey toward death of someone they love. I hope that they will help caregivers--past, present and future--understand that other people have trodden a similar path, found it just as tangled and circuitous, yet managed to forge a way through that worked for them and their families. I hope the stories also serve to increase understanding and empathy in the general community, and among health professionals and policy makers, about the problems faced by family carers and the support they may need.

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Buchbeschreibung Tablelands Press, United States, 2014. Paperback. Buchzustand: New. 216 x 140 mm. Language: English . Brand New Book ***** Print on Demand *****.A Hospital Bed at Home is a linked collection of true stories about the experience of being a carer during the weeks, months and years that can stretch between the day someone you love is diagnosed with an incurable, fatal disease and the day of his or her death. Couples facing separation after forty years together; a workaholic with three small children and a dying, angry wife; an Irish immigrant called home to nurse an ailing father who cannot, or will not, eat; a Buddhist couple striving for serene acceptance of a brain tumour. The patients and carers profiled in these stories bring to their challenging situations the gamut of typically human strengths and weaknesses, plus all the baggage of their pre-existing relationships. The narratives are intensely personal and biographical, but the insights and information they contain about illness, caregiving and dying at home have profound and general relevance. The author s reflections on these topics are woven throughout, linking the individual stories and concluding with a gritty memoir about caring for her own mother, an anxious optimist who was ravaged by cancer. Buchnummer des Verkäufers APC9780992423605

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Buchbeschreibung Tablelands Press, United States, 2014. Paperback. Buchzustand: New. 216 x 140 mm. Language: English . Brand New Book ***** Print on Demand *****. A Hospital Bed at Home is a linked collection of true stories about the experience of being a carer during the weeks, months and years that can stretch between the day someone you love is diagnosed with an incurable, fatal disease and the day of his or her death. Couples facing separation after forty years together; a workaholic with three small children and a dying, angry wife; an Irish immigrant called home to nurse an ailing father who cannot, or will not, eat; a Buddhist couple striving for serene acceptance of a brain tumour. The patients and carers profiled in these stories bring to their challenging situations the gamut of typically human strengths and weaknesses, plus all the baggage of their pre-existing relationships. The narratives are intensely personal and biographical, but the insights and information they contain about illness, caregiving and dying at home have profound and general relevance. The author s reflections on these topics are woven throughout, linking the individual stories and concluding with a gritty memoir about caring for her own mother, an anxious optimist who was ravaged by cancer. Buchnummer des Verkäufers APC9780992423605

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Buchbeschreibung Tablelands Press. Paperback. Buchzustand: New. Paperback. 252 pages. Dimensions: 8.5in. x 5.5in. x 0.6in.A Hospital Bed at Home is a linked collection of true stories about the experience of being a carer during the weeks, months and years that can stretch between the day someone you love is diagnosed with an incurable, fatal disease and the day of his or her death. Couples facing separation after forty years together; a workaholic with three small children and a dying, angry wife; an Irish immigrant called home to nurse an ailing father who cannot, or will not, eat; a Buddhist couple striving for serene acceptance of a brain tumour The patients and carers profiled in these stories bring to their challenging situations the gamut of typically human strengths and weaknesses, plus all the baggage of their pre-existing relationships. The narratives are intensely personal and biographical, but the insights and information they contain about illness, caregiving and dying at home have profound and general relevance. The authors reflections on these topics are woven throughout, linking the individual stories and concluding with a gritty memoir about caring for her own mother, an anxious optimist who was ravaged by cancer. This item ships from multiple locations. Your book may arrive from Roseburg,OR, La Vergne,TN. Paperback. Buchnummer des Verkäufers 9780992423605

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