Resilient As Always. Dieser Artikel ist nicht verfügbar.Resilient As Always

Fibrodysplasia ossificans progressiva, or FOP, is a rare genetic condition that affects one in one million people. This condition causes muscles and connective tissues to gradually turn into bone. Symptoms usually begin during childhood and can restrict movement. "Resilient As Always" aims to support these brave children emotionally during their FOP journey. We hope to inspire resilience and hope for these courageous kids.

Endorsement
"Resilience and Hope. That is the message that Danielle and Dean Wang portray in their beautifully illustrated parable “Resilient As Always.” Waiting for a cure is not an answer for Lily or her family; her life must be lived as a cure is desperately pursued. Her struggle against FOP - one of life’s rarest & and most disabling conditions - and the love of her family show us that diseases are not just biological processes; they are human experiences. As someone like Lily told me long ago, 'I may have FOP, but it’s not who I am.'"

--- Frederick S. Kaplan, M.D., Philadelphia

About FlairCare
Danielle Wang and Dean Wang are the founders of FlairCare, a 501(c)(3) nonprofit organization based in the United States. FlairCare aims to cultivate healing environments that enrich youth physical and mental health. Reaching local and global communities, the organization's initiatives include drawing with pediatric patients, collaborating with children's hospitals, and creating the As Always illustrated book series. Please reach out to join our mission, delivered with Flair!